Fustration with finding GeneSight Testing

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GeneSight Testing Info

Songs of praise are being sung about Genesight Psychotropic (More info on GeneSight Psychotropic testing) by Keri’s in home behavioral therapist and the family support work. This test is a DNA test- swap the inside of the cheek and send the test back.This test helps to figure out what is the best medicine to use, use with caution, or not to Use at all for antidepressants or antipsychotics.

The family support work had the test done on his son. He said it was the best thing he could have done. His son has ASD, and it has helped this child out. He even gave me the name of a doctor who does the testing … since I have been having trouble locating a doctor who does this test.

Keri is on Depakote (500 mg in the am, 250 in the afternoon, and 500 mg in the pm) and Abilify (10mg in the am and 10mg in the pm). Recently, the bloodwork done, showed the Depakote levels being too high in her system. The doctor lowered the afternoon dose from 500 mg to 250mg – in hopes that the levels will decrease. If the Depakote levels are still too high, then the doctor wants to play guessing games with new medications.

Playing guessing games with medications upsets me. Keri in the past 3 years has been on so many different Meds. Rather then playing guessing games … is it not much more logical to do this test and see what may be a better match to her DNA? (At least I think it is )

However, Keri’s psychiatrist does not provide this test nor does her pratice. The doctor who does do this testing does not accept my insurance. He is VERY expensive!!! My daughter’s insurance company (Horizon NJ BCBS- Medicare) has told me that if the doctor’s office calls and requests a “nonparticipation provider authorization form” to explain why they are the only who can treat my daughter, then it will be covered 100%.

Sound easy right? Hell NO!!! The doctor’s office refuses to call the insurance company and ask for this form. I called the insurance company back and explained what was going on. I asked if I paid out of pocket if I sent bill into the insurance company , if I could be reimbursed. I was told by a very mean woman “no, you will not be reimbursed because you went out of network and Knew it!”

WTF!?! If this is a neurodevelopmental doctor AND he is the the Only doctor that provides this test, then what other choice do I have?

Trust me, I called the company who makes this test and they provided me with the numbers of people who might provide this test. I am running into the same issue as the other doctor. I have called doctors on my own and they do not offer this test.

Between getting set up ABA and this -everything is a struggle when you are just trying your best as a parent to help your child!

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