GeneSight Psychotropic Testing Part 2

https://autismlifeandharddecisions.wordpress.com/2015/07/28/genesight-psychotropic-testing/

Above is the link to the orginal post from July 2015.

K originally had this test done by her psychiatrist’s in July 2015.

I should have posted her results a year ago. Why didn’t I?

This GeneSight Psychotropic Testing is a swab done in the mouth. This test will tell you what is the best medicine to use based on the DNA of the individual. 

See the link to GeneSight’s website for more information:

 Video on GeneSight Psychotropic Testing 

GeneSight Psychotropic Testing Website 
The reason I did not post the results, is because it turned out to be a disappointment were K is concerned. 

The photo above is not from K’s results. But to be used only as an examples.

The medicatons listed in green as use as directed for K were medications she had already been on. They were medications that had given her adverse reactions:

  • Zyprexa – extreme weight gain
  • Seroquel – increased aggression 
  • Depakote – increased liver enzymes 

The results were disappointing so much so that the Doctor did not want to discuss the results with me. But she did when I insisted upon knowing the outcome.

I wished it could be the miracle answer to the magic pill that would have helped K, but it was not. 

That is why I did not post the outcome until a year later.

But in a way it is like asking advice from other people on a new medication. Did it work for you? Did you have a good experience with that medication? OMG, I am not using that medication becuase Joe Shmoe had a horrible reaction!!!

My experience with the GeneSight Psychotropic Testing may not be the same experience that you have. It may hail the wonder drug that will work for you or your loved one. 

Like I have said in my other post about medications  (To Medicate or not to Medicate that is the question) – Do not let anyone’s horror stories or sworn testamony of mircales have any impact on whether to give the medicaton or not.

In this case – Do not let anyone’s horror stories or sworn testamony of mircales have any impact on whether you take the GeneSight Psychotropic Test!

If this test can help anyone and reduce the trial and error games of prescribing medications than it is a benefit!!!

The test is best on individual results – again K’s experience may not be your experience! 


Fustration with finding GeneSight Testing

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GeneSight Testing Info

Songs of praise are being sung about Genesight Psychotropic (More info on GeneSight Psychotropic testing) by Keri’s in home behavioral therapist and the family support work. This test is a DNA test- swap the inside of the cheek and send the test back.This test helps to figure out what is the best medicine to use, use with caution, or not to Use at all for antidepressants or antipsychotics.

The family support work had the test done on his son. He said it was the best thing he could have done. His son has ASD, and it has helped this child out. He even gave me the name of a doctor who does the testing … since I have been having trouble locating a doctor who does this test.

Keri is on Depakote (500 mg in the am, 250 in the afternoon, and 500 mg in the pm) and Abilify (10mg in the am and 10mg in the pm). Recently, the bloodwork done, showed the Depakote levels being too high in her system. The doctor lowered the afternoon dose from 500 mg to 250mg – in hopes that the levels will decrease. If the Depakote levels are still too high, then the doctor wants to play guessing games with new medications.

Playing guessing games with medications upsets me. Keri in the past 3 years has been on so many different Meds. Rather then playing guessing games … is it not much more logical to do this test and see what may be a better match to her DNA? (At least I think it is )

However, Keri’s psychiatrist does not provide this test nor does her pratice. The doctor who does do this testing does not accept my insurance. He is VERY expensive!!! My daughter’s insurance company (Horizon NJ BCBS- Medicare) has told me that if the doctor’s office calls and requests a “nonparticipation provider authorization form” to explain why they are the only who can treat my daughter, then it will be covered 100%.

Sound easy right? Hell NO!!! The doctor’s office refuses to call the insurance company and ask for this form. I called the insurance company back and explained what was going on. I asked if I paid out of pocket if I sent bill into the insurance company , if I could be reimbursed. I was told by a very mean woman “no, you will not be reimbursed because you went out of network and Knew it!”

WTF!?! If this is a neurodevelopmental doctor AND he is the the Only doctor that provides this test, then what other choice do I have?

Trust me, I called the company who makes this test and they provided me with the numbers of people who might provide this test. I am running into the same issue as the other doctor. I have called doctors on my own and they do not offer this test.

Between getting set up ABA and this -everything is a struggle when you are just trying your best as a parent to help your child!