HOUR 11 – E.R Odyssey Contiunes PART 3

Outside is a beautiful day …
Blue skies with puffy white clouds. The kind of clouds that make you want to sit back in a field and stare at the sky. While trying to name the shapes of the varous clouds. A bit of a breeze blowing to take the edge off the heat. Today would be the perfect beach day … enjoy the waves with your childern, family and friends. A great day to be on the boardwalk playing games, riding rides or eating ice cream. A glorious day to go claming in the bay – then enjoy the days catch with a surf and turf bbq with loved ones.

But none of that is for Keri and I. I will get a 5 min glimance of the outside when I can get a chance to have a cigarette. Keri is stuck in room 34 in the E.R. We have gone over the 24 hours of being here. We will now be working on 48 hours!

Currently, she is resting peacefully from a drug induced sleep. Keri had another meltdown. John was barely unable to hold her down. I had to call the nurse in. The Doctor gave her a shot of Ativan to calm her. These hospital’s psychiatrist doctor prescribed over the phone an increase of her current meds. Keri will now receive 3 times a day .1 mg of clonidine, 2 times a day 200 mg of tegretol. The abilify will remain the same of 10mg 2 times a day.

Before this meltdown, I finally was able to speak with her primary psychiatrist Dr. L and the CMO Case Manager. Dr. L told me that because Keri’s meds have been changed so much that she needs to go into a psych unit in order to have any additional med changes monitored. That also it is too dangerous to just discharge her after the hospital doctor sees Keri. Dr. L also stated that this emergency room has an obligation to keep her until a bed has been found at a psych unit. Her CMO Case Manager said the same thing.

A different Mental Health Administrator came in to speak with me. She was very nice and explained the situation to me. Currently, Keri is scheduled to see the hospital psychiatrist Dr. Z. He is contacted with the hospital on an on call situation. Dr. Z will not be able to see Keri until 8 or 9 pm tonight. From there he will pressure what whatever place to find a bed for her. Ms.A (the mental health administrator) is in the process of calling places in this state and other states to find a bed. Yes, a bed out of state since no other hospital wants to take her or has an open bed.

You read that correct – a bed out of state in an out of state psych unit because there are hospitals in this state that are REFUSING to take her!!! From what Ms.A explained, a psych unit can deny acceptence for any reason like:

•Low IQ
•Non-verbal or limited communication skills
•Wears a diaper
•Certian diagnosises – like Autism, Bipolar, etc.
•The unit thinks the patient will not benefit from therapies offered at the facility.
•There is an over flow of a certian diagnosis ie: to many people with autism.
•Age despite a hospital’s website says the work with kids 5 and up.
•Insurance
•Or pretty much any damn reason the deem fit at any given moment.

So pretty much Keri and I are screwed at this moment. We will camp here at the hospital until a bed opens up.

But wouldn’t this be a form of medical discrimination? If a psych unit has an open bed and a patient is in need of it…
As long as the patient fits the basic criteria of the program – a child in a program for mental illness that is designed for childern regardless of the above. The same would go for an adult. Or maybe this state needs to open more inpatient facilities for people who autism or bipolor or whatever. It is not fair to have them sit in the emergency room for days at a time while in crisis until the parent who is too fusturated, stressed and tired and says to hell with it. Then have to take an unstable person home with no other resources to help them.

I will not be that person. I will not allow my daughter to slip through the cracks because no one want to help a child with autism/bipolar. I will not allow her to continue to hurt herself or me or other people. I will not allow either of us to become a tragic news story. I WILL CONTINUE TO ADVOCATE FOR HER AND GET HER HELP.

HOUR 11 – Emergency Room Visit Part 2

I left off that paper work had been filled out by me for Hospital M. I was waiting on transporting information.

Come to find out that Hospital M had additional questions about Keri.  Once the answers had been recieved by the Doctor at this hospital – they refused to admit her.

The mental health administrator at the ER said that said Hospital M felt that Keri was not a good fit. Also that Hospital T (a different hospital which Keri had stayed at with her first hospitalization) had no beds available. Hospital K and other programs refused to take her. Why? I will get to that in a moment. 

This administratior wants her to see their child psychiatrist, fo a med change and send her home. WTF!!!?!? SEND KERI HOME???

Not at this moment in time when she is a danger to herself and to others. I will camp out here all week until something can be found for her if I have too.

So some of the programs refused her based on age and medical conditions (autism, adhd, bipolar, and mild intellectual disability). So who do I hold accountable if when discharged Keri goes completely of the deep end and tries to kill herself, majorly hurts herself, or someone else… since I cannot get help for her? And with this you may wonder why some parents go off the deep end along with their kids and make the news – this might be the reason why!!!

But let me contiune from the point of refusal from last night … John and Maggie were here with me last night. Since, Keri and I had no other option, we stayed the night at the hospital. John and Maggie left since Keri was asleep and there was nothing to be done at that time.

I tried to fall asleep with 2 chairs pushed together and sitting up using a pillow against the wall for my head. I could not get comfortable not fall alseep. I also had a serious case of numb butt. A kind nurse brought a gurney in for me to sleep on. Not super comfy, but better then the chairs. I was able to get 4 hours of sleep.

I woke up at 7am. Keri was awake and ok for 5 mins. She then started to act up and climb the bed and get out of the bed. She started to smack on the computer in the room. I had to call the nurse’s station for help. Keri kept breaking away from my grip. In came 3 security guards to hold her down for at least 10 – 20 mins. Keri then got the “mega meds” to calm her –  a shot right to her arm.

It basically made her like a little drunk person. Keri had her morning meds minus the abilify. She slept for a little and woke up about 10:30am. She finally got her pill at 11 am about 4 hours after getting her first meds

Between 8 am and 10 am, I was on the phone calling her primary psychiatrist, her case manager for CMO. I was leaving messaves and trying to get
human or a supervisor that could help.

I will continue this in a new post … part 3. We have now been here for over 24 hours. And many more hours to go. Many days more perhaps…

Hour 11 – Emergency Room Visit

Keri had a complete and total meltdown earlier today. So here we are at the E.R working on hour 11. They have found her a bed or are working on finding her a bed at a pediatric psych unit.

Earlier today, Keri was agitated – for what reason is unknown. It started out with being upset and screaming and lost in her own little world. Her Granddad came over, Keri wanted nothing to do with him. All she did was grunt and scream in response to him.

About an hour or so after Keri’s Grandad left, she started to meltdown. Crying, screaming, trying to over turn the table in the kitchen. She knocked over a chair before flinging herself onto the couch. Once on the couch her rage did not stop. Keri continued with the self harm. She was pulling her hair. Keri was scratching herself – but left little to no marks since her nails had been recently cut. She was biting her arms. She then looked at her wrist and said “bite wrist” and proceeded to gnaw at her wrist.

I tried to talk her down, but she did not heed or hear my words. I tried to get in to restain her. But she was linging at me, trying to scratch me, bite me, hit and kick. Keri actually kicked me off the couch.  There was no way for me to get close to her. Keri also knocked items off the end table and threw the small drawer to the end table.

A while ago, Keri cracked the one of the windows by the couch and there are 2 other windows in the same area. I was afraid that she would further hurt herself or break a window or hurt me. There was no choice but to call 911.

The cops came, Keri stopped and was too busy staring at them. She was ok in the ambulance. In the hospital, she started to act up. They gave her a shot of something to calm her. Once Keri was calm, the nurse took blood samples and a urine sample.

While on this shot of whatever, Keri was still with her “not so great smile and laugh” and grunting. The agresstion was gone. Later on when this med wore off, Keri started to try to pinch, bite, and hit me. When she realized she could not get to me, Keri started to try to climb the bed. I could not get her down and had to call the nurse in. At this point neither the nurse nor I could get her settled down. The nurse had to call in another nurse and 2 security guards to help restain her. There were 2 nurses, 2 security guards, and me – 5 people having to restrain her!!! 5 people to hold down a preteen girl who weighs 108 lbs and is 4 ft 7 inches tall!!!

My sister Maggie and John walked in as this 5 people restaining scenario played on The doctor gave her Ativan instead of the other medication. This calmed her and got her to finally go to sleep.

Come to find out … there was one hospital that I will call Hosptial M had agreed to take Keri. I filled out the paper work to have Keri transported. 

I will write more tomorrow since it is 3 am. And a kind nurse just brought in a stretcher in for me to sleep on. Trying to sleep sitting up right in 2 chairs pushed together is uncomfortable to the highesr degree.