The Story Of The Beautiful Poobs :(

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Keri every once in a while will say “My hand lines are beautiful.” Or she will say “My nose holes are beautiful.” Along the same lines of “My eyes are beautiful.”
Keri will say that naming different body parts.

She was sitting on the couch a few weeks ago doing this same thing. Except this time around, she says “My poobs are beautiful.”

Now I am half hearing her. I am in the kitchen doing dishes. Keri says it again so I come out of the kitchen to see what she wants.

This time she says it with more finesse “My poobs are beautiful.” All the while rubbing both her hands across her chest!

Ok, I get it this time … she is saying her boobs are beautiful! Yikes, I am panicking because boobs is a word not used in our house and the fact that she is rubbing her hands across her breasts. Keri is starting to develop a little, but how she is saying it is purely innocent.

So she named her breast “Poobs”. On occasion she will say “Poobs will magically grow”. Or say “My poobs are beautiful.”

I try not to encourage her, but wish me luck – she is starting puberty 😨

Update on Keri

image Since there has been no new updates on Keri other then October, I figure this is a good time to do just that. In October,  Keri’s old out of district  (ood) placement, the teacher was doing very little to help or teach Keri. Between the one on one aide and the home school district seing the same concerns, Keri was placed in another OOD placement. A much better program and her teacher is a BCBA. However, Keri’s behaviors are about the same. She has a good days/moments and bad. I just never know what I am going to get with her. I recently had to cancel her birthday party. That may sound mean … but Keri has to “earn fun things”, and she did not earn her birthday party. I will not reward bad behavior, regardless of what caused her to at out. At some point in time, Keri has to realize certian behavior are not ok. Autism or no Autism, she has to learn acceptable behavior! Last Monday, Keri had off from school for MLK day. She had an eye appointment to check her eyes and pick out glasses. I had used a social story to explain what would happen at the office. I also explained that if glasses were needed, she would not take them home the same day. The exam part went fine as well as picking out the glasses. When it came time to measure her pupils and hand the glasses over, Keri lost it. She start crying and screaming so I escorted her out of the office. Once outside, she started to bite herself and scratch herself. She tried to break away from me and bite me as well. Keri then tried to run back towards the doctor’s office. I was able to get a hold of her and get her onto the car. Inside the car, Keri the proceeded to pull her hair ou and continue with the scratching. I got her home 20 mintues later and then she calmed down. On Tuesday, she acted up for her grandfather. He gets her on the school bus in the mornings. Keri was good for the first part of the morning. Then the grandfather decides to take her to Wawa like he does sometimes when she is good. He will let her pick out a little snack and he gets milk or a newspaper. Well, that morning, Keri broke away from her grandfather’s hand and starts running all around the store. She thinks its a game and funny – all the while laughing and running around. Then Keri goes behind the deli counter and her grandfather has to go back there to get her. He left the store with her and Keri did not get anything. On the ride home, Keri is throwing stuff at her grandfather WHILE he is driving. He was able to back to his house, but that is not safe for him or her!!!! I have had plenty of these moments with her in the past and going back several years. These two incidents back to back is what cause Keri to loose het birthday party. I will not have 20 people over to celebrate a fun event for a child who may not behave. Keri knoes exactly why she lost het birthday party. If Keri can maintain a certian level of behavior this week, then I will take her to build a bear and her uncle’s this weekend. If not, then she will loose those activities this weekend too. Right now she is at level zero … she has not been to a store last Tuesday. The only places she has gone is to school and her psychiatrist’s office. I did on Thursday have a meeting with her case manger and her therapists. We are pushing residential placement as her behaviors and elopement issues are a safety concern for her and those around her. It will take any where from 1 to 6 months to place Keri. She is 9 soon to be 10. Her behaviors have remained the same despite OOD placement, 6 hours of in home therapy, horseback riding therapy, and a slew of different medications being tried. In the past other therapies (both holistic and traditional) have been tried with dietry changes, and still no improvement in the behaviors. She is officially to strong for me to try to restrain when she needs it. Plus she has tried to hurt me with out being sad or mad. Keri was completely calm and tried to twist my arm earlier this month. I could barely get her hands off my arm. Then at her psychiatrist’s office, Keri started to throw toys and rip up game peices. I asked her to pick the items up, she refused and laughed. I tried to get her to sit in a chair and she kept getting up and dragging me to the ground … Keri is 9. She will be 10 soon. Keri weighs 110 pounds. She is nearly 5 foot tall. Keri is strong – stronger now then me. Keri is a danger to herself and those around her … It is time the hars decisons are made. It is time for Keri to be placed in residential. It is not an easy decison , but has to be done. She is only 9 and still a child – this is a parent’s hardest choice to make 😟:😦:😭

Happy Monday

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Happy Monday where there are early school dismissals, loss of working hours, and a blizzard warning!

Yay, it is Monday 😕

Keri will be homr around 1:30 and I will be done with work around 10:30.

Keri’s mission today is to clean her room. She decided last night at 1 am that it was time to do some light reading and have a snack.

Amoung the giggling and moans, I told het to go back to bed twice. Round 3 was taken care of by my boyfriend. He found Keri’s snack was indeed her book.

Yes, that is right, she was chewing on her book. So her room will be cleared out of any paper products latet today.

She started clonidine on Friday.  Not sure if it is Keri being Keri, or something from the meds.

Medication merry-go-round and issues with her school

Here we go, here we go, here we go again On the merry go round of meds. Yesterday, Keri had her psychiatry appointment. We had discussed Keri’s behavior and if the current meds of abilify and depakote were working for her. Her behavior has really not improved. So it was decided to take her off of the depakote and put her on lithium. So now the next three days will be used to wean her off the depakote and introduce the lithium. After the three days are up, the lithium will be a dosage in the morning and before bed. Keri will also still beyond the abilify in the morning and in the PM.

Keri in the past two weeks has acted up in school, has tried kicking me while I have been driving, has slammed her grandfather’s hand in the door of a closet. She also has tried to scratch me and bite me when John has not been here. Keri listens to John better and does not get as aggressive with him.

Also her school is not following her BIP . It was revised at the end of September to include the start and end time of when Keri is sent to in school suspension. There have been four instances of non-compliance by the school regarding her BIP. The school also has not been following IEP. The work that Keri has been doing is subpar to what she did last year. They have not worked on double digit adding or subtraction. They have not worked on money until the start of October. Nor have they worked on time until this week. Her handwriting skills are hard for her, and they were supposed to introduce typing. They got a hold Neo 2 , but the teacher just gave it to the OT. There are no batteries or wires for this unit. The OT is using an alphasmart , but it is not being used in the classroom. There were also other concerns about the classroom and the teacher not being highly structured. I had a meeting on Monday with the school principal, her teacher, and the behavioral specialist. I had felt that the meeting went well, however I was proved wrong on Tuesday. When Keri came home from school, the daily report showed she went to in school suspension and there was no start or end time on the paperwork. So I was quite dismayed over this fact. This is a complete and utter disregard and a slap in the face by her teacher just a day after the meeting. I told her case manager for the sending district, is that this may not be the placement for her. So with that being said, I even had her doctor write a doctor’s notes stating that a behavioral log needed to be completed so the doctor could track her behavior as well. That this log needs to include the times and dates of any behavioral instances. So we shall see how it goes…

Triggers for Meltdowns

What are the known triggers that cause your child to go into meltdown mode?

For my daughter they are as listed :

1) Being told NO/ not getting her way
2) Having to wait
3) Daddy issues
4) When she is hungry
5) When she is tired
6) Doing homework/ handwriting
7) Change in routine
8) Being corrected

Then the other cause is internal and a complete mystery! There is no rythme or reason behind it. She can be happy one moment, then BOOM, the next moment she is having a meltdown! It comes from a non-logical place. The only way it can be explained is that she has a mood disorder, like Bipolar.

When she was in the hospital, the doctor said he felt like she has a mood disorder. He was heistant to give an official DX, because of her limited speech and the behaviors being hard to separate from the Autism.

And I am back…

I have not kept up with this blog … Why? Very simple, I have been busy with my daughter, her behaviors, John moving in, back to school and issues with that. Also work related issues and childcare issues which have been resolved. Just a lot of stress in the past 2 months … somethings had to go by the wayside. But now hoping things have settled down, I can actually post a bit more reguarly.